Last Posted: Oct 01, 2017
- These moms have the BRCA gene mutation. Here’s how it affects their parenting.
Washington Post, Sep 30, 2017 - The power of shared experience: Empowering women to face their cancer risk
K Lopez, NSGC Blog Post, Sep 2017 - Do What I Couldn’t…and Go Save Your Life
Amy B Shainman, June, 2017 - Personal Stories of People Living with Deep Vein Thrombosis and Pulmonary Embolism
CDC Social Media - Personal Stories of Patients with Familial Hypercholesterolemia
The FH Foundation - Personal Stories of Deep Vein Thrombosis
CDC Flickr Album - A cancer legacy
J Couzin-Frankel, Science, January 29, 2016 - My legacy to my daughters: BRCA and cancer?
L Goldin, January 25, 2016 - How I Avoided Cancer 6 Times
D Hardesty Blog Post, My support 360, January 2016 - Genetic Testing: Understanding the Personal Stories.
DuBois James M et al. Narrative inquiry in bioethics 2015 5(3) 201-3 - Diagnostic impact of genetic testing in hypertrophic cardiomyopathy: The story of two families.
Lorca Rebeca et al. International journal of cardiology 2015 Dec 205161-162 - Illusions of Certainty
C Keirns, Narrative Inquiry in BIoethics, Winter 2015 - Recommendations and Reality: What Personal Stories of Hereditary Cancer Can Tell Us
R Green Fisk, CDC Blog Post 2015 - Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin
S Foye, Narrative Inquiry in Bioethics, Winter 2015 - Genetic Testing: Understanding the Personal Stories
J Dubois, Narrative Inquiry in Bioethics, Winter 2015 - Hereditary Cancer Personal Stories: Over 1 million people in the United States have an increased risk for certain types of cancer
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