DÍA DE LAS ENFERMEDADES RARAS 2017
RARE DISEASE DAY 2017 - OVERVIEW
An enormous THANK YOU to all who took part in Rare Disease Day 2017!
The first Rare Disease Day, in 2008, was celebrated in 18 countries, almost all in Europe. In 2017, for the 10th edition of the day, Rare Disease Day events took place in 94 countries and regions on every corner of the globe, from islands such as Mauritius to large developing nations such as Botswana and Sudan. Media from all over the world covered the day, in which politicians, researchers, medical professionals and policymakers in Europe, the US and many more countries and regions participated. To see all of the media coverage of the day, visit the media section of the website.
Rare Disease Day 2017 Official Video
- Features rare disease patients Océane, Geoffray and Mathieu
- The video highlights how isolating it is when you search on the internet but receive the response 'your search had no results'
- Published in 33 languages and viewed hundreds of thousands of times
- Disseminated worldwide via social media - the video was viewed 205,000 times on Facebook alone
Rare Disease Day Events
- Events took place in all continents, in 94 countries and regions (more countries than ever before), including for the first time in Botswana, Nigeria, Senegal, Sudan and Saint Pierre and Miquelon
- Events included everything from fun-runs to conferences and picnics in the park to film festivals
Rare Disease Day Website
- In the 2017 build-up to Rare Disease Day, the website received over a hundred thousand sessions, a 30% increase on the same period last year
- On the day, tens of thousands of people visited the site
Social Media Success
- 2017 saw the most successful #RareDiseaseDay Thunderclap yet, with a social reach of nearly 2 million people
- #DiaMundialEnfermedadesRaras trended worldwide
- #RareDiseaseDay trended in over 10 countries, including the USA, the UK and Canada
- Posts on the @rarediseaseday Twitter account received half a million impressions, more than 60,000 more than the previous year
Media Coverage
- As well as being mentioned by the President of the United States, Rare Disease Day 2017 received great media coverage all around the world, from the Philippines to Iran. Check out some of the articles and radio clipping in which we were mentioned!
More information on the 10th edition of Rare Disease Day
Now, we want to hear about your events and experiences on Rare Disease Day!
Upload your photos and videos onto our website and send us your press clippings and links to videos if you had any media coverage for our media page!
If you haven't uploaded your 'Raise and Join Hands' photos you still have time.
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