EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org





The Voice of Rare Disease
Patients in Europe

NEWS & CURRENT ISSUES CHANNEL

One Woman; Lots Of Hats (Ignite Cardiff #29 – Episode 4 – Gillian Thomas)1.09.20166:11

Help RareConnect.org break the isolation15.12.20151:22

Together We Can #SaveTheBoys9.07.20151:42

Unveiling Scleroderma - World Scleroderma Day 201517.06.201536:00

LIVING WITH A RARE DISEASE CHANNEL

NEU Your support makes a difference... ut12.04.20165:50

Human Timebombs - Winner at Neuro Film Festival1.03.20165:00

The MUltiple System Atrophy Coalition: A Call to Action1.12.20153:49

Parents Talking About The Chromosome 18 Registry & Research Society21.09.20155:02

PATIENT GROUPS CHANNEL

Wacean [English]22.06.20161:31

Give a Toss for Huntington's Disease8.10.20155:39

An Introduction to Williams Syndrome27.08.20159:29

Documentary on Rare Diseases Day by Day5.06.201550:20

EURORDIS EVENTS CHANNEL

George Freeman MP - UK Minister for Life Sciences31.05.20163:00

ECRD 2016 Opening Session Part 1/42.06.20168:14

ECRD 2016 Opening Session Part 2/42.06.201611:51

ECRD 2016 Opening Session Part 3/42.06.201616:45

EXPLAINING RARE DISEASES CHANNEL

We are the Families - Fighting to cure MECP2 Duplication Syndrome together!25.12.20152:33

What is EB animation15.01.20162:27

What Is FOP12.03.20151:24

Your Sister Has Williams Syndrome5.10.20151:59

RESEARCH CHANNEL

Why are physician-scientists crucial to our future? | Dianna Milewicz | TEDxHouston19.11.201515:40

Bridging patients and researchers to advance research in rare diseases.16.02.20106:38

Opening Speech by Robert Madelin to European Workshop on Rare Disease Research18.03.20105:58

Research: Cells from Niemann Pick C1 patients used to combat Ebola virus24.08.20113:48

RARE DISEASE DAY CHANNEL

Rare Disease Day Official Video 20162.02.20161:52

Campaña FADEPOF 2015 - Día Mundial de las EPOF27.02.20151:22

A message from Sean Hepburn Ferrer, Rare Disease Day Ambassador 201517.02.20152:04

Rare Disease Day 201520.02.20153:04

ORPHAN DRUGS & TREATMENTS CHANNEL

European orphan designation3.04.201415:50

FDA orphan designation3.04.201431:27

Episode 17 - Future Outlook on the Orphan Drug Market2.01.20146:59

Eric Gervais of Medunik Canada on Canadian orphan drug market at World Orphan Drug Congress USA 201314.05.201312:15

HEALTH POLICY CHANNEL

Take&Tell (Official song)13.05.20152:05

EXPANDED NEWBORN SCREENING AISMME8.10.20090:35

The Genodermatoses Network25.05.201510:23

Europe's eHealth Action Plan: An Interview with Benoit Abeloos29.09.201410:45

NON-ENGLISH VIDEOS CHANNEL

K.Swierczynska 19.06.201523.09.20161:42

Esclerodermia - De la mano, por un mejor futuro - Princesa17.06.20162:26

NF Spezialambulanz25.04.20161:31

Tous Pour Sans Diag17.05.20163:39

WEBINARS

Webinar: New survey on the impact of rare diseases on daily life!23.09.201641:22

RareConnect.org webinar How to use Twitter to build your online rare disease precense29.06.201642:48

RareConnect.org webinar: How to start an awareness day for your rare disease5.05.201657:47

EURORDIS webinar Launch of Rare Barometer Voices26.04.201649:54