EURORDIS TV
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Together We Can #SaveTheBoys
09.07.2015
1:41
Unveiling Scleroderma - World Scleroderma Day 2015
17.06.2015
35:59
I Advocate Interview - Jan Geissler
01.12.2014
16:42
Scientists Track Link Between Ebola and Rare Genetic Disease
03.11.2014
3:18
Susan Etlinger: What do we do with all this big data?
20.10.2014
12:27
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Two families living with a FOXP1 gene mutation meet in person
16.09.2015
Mi vida conmigo - Vivir con FOP/My life with myself - Living with FOP (Englis...
21.08.2015
My Face: Waardenburg Syndrome
01.02.2015
IMAGINE - Short Film - Niemann-Pick C
13.06.2015
The Girl Behind The Face | Rog Thomas, Tina Thomas & Mui Thomas | TEDxHongKon...
29.07.2015
16:34
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Documentary on Rare Diseases "Day by Day"
05.06.2015
The LAM Foundation Awareness Video
03.06.2015
Awareness Campaign Retinoblastoma
24.04.2013
40:59
Interview Dr. Bakker NF Europe conference Barcelona 2014
22.10.2014
4:13
Move the ones who can't!
05.11.2014
4:32
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Peter Ryan - EURORDIS Gala Dinner 2015
16.04.2015
11:03
Rare but Real: Talking Rare Diseases (part 1/6)
24.03.2015
18:06
Rare but Real: Talking Rare Diseases (part 2/6)
24.03.2015
23:39
Rare but Real: Talking Rare Diseases (part 3/6)
24.03.2015
23:33
Rare but Real: Talking Rare Diseases (part 4/6)
24.03.2015
27:23
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Ellie's Story - Undiagnosed Genetic Conditions
24.04.2015
3:00
Rare Disease: The GP's role
25.02.2015
7:58
Think Again. Think NP-C campaign showreel
02.09.2014
3:34
Susan Norwell Introduces Rett University
12.11.2013
6:37
RareConnect Castleman disease community webinar
18.04.2014
44:42
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Bridging patients and researchers to advance research in rare diseases.
16.02.2010
6:37
Opening Speech by Robert Madelin to European Workshop on Rare Disease Researc...
18.03.2010
5:57
Research: Cells from Niemann Pick C1 patients used to combat Ebola virus
24.08.2011
3:47
Telethon's Scientific Committee: the focus on patient need
30.07.2013
4:22
2014 Metabolic Origins of Disease Symposium - Scientific Highlights
10.04.2014
7:33
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Campaña FADEPOF 2015 - Día Mundial de las EPOF
27.02.2015
1:21
A message from Sean Hepburn Ferrer, Rare Disease Day Ambassador 2015
17.02.2015
2:03
Rare Disease Day 2015
20.02.2015
3:03
Rare Disease Day 2015 Official Video
16.02.2015
2:16
Día internacional de las Enfermedades Raras, 28 feb 2015
16.02.2015
2:01
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European orphan designation
03.04.2014
15:49
FDA orphan designation
03.04.2014
31:26
Episode 17 - Future Outlook on the Orphan Drug Market
02.01.2014
6:58
Eric Gervais of Medunik Canada on Canadian orphan drug market at World Orphan...
14.05.2013
12:14
What does the black triangle mean?
01.10.2013
2:44
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The Genodermatoses Network
25.05.2015
10:22
Europe's eHealth Action Plan: An Interview with Benoit Abeloos
29.09.2014
10:44
European recommendations for the treatment of haemophilia and other bleeding ...
14.07.2014
3:48
Philip Watt, Chair of the Rare Disease Taskforce Ireland
04.04.2014
10:15
Alastair Kent O.B.E Building the Rare Disease Strategy: Joining Together for ...
02.04.2014
27:05
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presentazione AKU
12.03.2015
10:52
NORBS projekat "?ivot nije dijagnoza" - Dan retkih bolesti 2015
26.02.2015
9:55
Steine im Weg - Leben mit dem Charge-Syndrom
21.01.2015
30:47
"Con gli occhi tuoi", una favola racconta le malattie rare
25.02.2014
18:08
Être différent c'est normal
13.03.2015
2:04
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